A special kind of care
At 18 years old, patients with life limiting and life threatening conditions leave children’s services and this can be a worrying time for families. Due to improved medicine and science, patients are living longer than expected. The J’s Hospice provides a dedicated, specialist service for these young adults to empower them to make choices about their care and treatment, as well as encouraging them to be who they want to be.
We aim to provide:
Specialist advice and support - each care package is unique, drawn up by our Clinical Nurse Specialists with the young adult’s involvement. Our nurses provide ongoing advice, support and advocacy to patients and carers.
Expert advice in transition from children’s to adult services - helping young adults and their families find their way through the complicated pathways to get the support they need.
Practical nursing care – symptom control, pain relief, monitoring medication and providing hands on nursing care to meet each person’s needs.
Respite care in the home – short breaks provided in the home by highly skilled healthcare assistants.
Counselling – an opportunity to share thoughts and explore feelings with a qualified professional.
Chaplaincy – provides spiritual support to everyone regardless of their religion or beliefs.
Music therapy – uses music to support communication and encourage self expression.
Complementary therapies – including massage and reflexology to ease anxiety, aid symptom control and encourage relaxation and comfort.
Volunteer drivers – use of The J’s Hospice mobility vehicle to enable patients to attend hospital appointments or The J’s Young Adult Groups.
Family support– someone to provide emotional and practical support both to a young adult and their family in their own home.
Young Adult Groups – These days allow young adults some time away from carers to socialise with people their own age, whilst enabling their parents to have some quality time together.
End of life care – recognising when a young adult is near end of life and helping prepare them and their family, and providing practical and emotional support.
Bereavement support – Continuing to be available after the loss of a loved one and offering support on a 1:1 or group basis.
“The J’s came to our son’s home, got to know him, gave him medical help, moral support and respected his wish to remain strong and positive” – Bereaved parents quote