About
What is The J's Hospice? PDF Print E-mail
Written by The J's   
Friday, 12 October 2012 10:53

The J's Hospice provides hospice and respite care services to young adults aged 16-40 who are living with life limiting and life threatening conditions including cancer, Duchenne muscular dystrophy, Juvenile Huntington's disease, cystic fibrosis and many more. These are complex conditions that, in most cases, will lead to the young adult experiencing severe disability.

Good care and symptom control is vital to improving health and wellbeing and can help prevent distressing emergency admissions to hospital. Our team has the experience and the expertise to support a young adult's medical needs in combination with all the other issues and difficulties that the whole family may experience.

We provide our hospice and respite care services for young adults throughout Essex in the patients' own homes. Our vision is to build the first dedicated young adult hospice in the East of England which will also provide day care facilities and access to therapies.

We want young adults to live the best possible quality of life, as independently as they can, as well as supporting them and their families at the end of life.

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Last Updated on Friday, 21 March 2014 10:10
 
The J's at Home - A special kind of care PDF Print E-mail
Written by The J's   
Tuesday, 16 October 2012 11:06

A special kind of care

At 18 years old, patients with life limiting and life threatening conditions leave children’s services and this can be a worrying time for families. Due to improved medicine and science, patients are living longer than expected. The J’s Hospice provides a dedicated, specialist service for these young adults to empower them to make choices about their care and treatment, as well as encouraging them to be who they want to be.

We aim to provide: 

Specialist advice and support - each care package is unique, drawn up by our Clinical Nurse Specialists with the young adult’s involvement. Our nurses provide ongoing advice, support and advocacy to patients and carers. 

Expert advice in transition from children’s to adult services - helping young adults and their families find their way through the complicated pathways to get the support they need. 

Practical nursing care – symptom control, pain relief, monitoring medication and providing hands on nursing care to meet each person’s needs.

Respite care in the home – short breaks provided in the home by highly skilled healthcare assistants.

Counselling – an opportunity to share thoughts and explore feelings with a qualified professional.

Chaplaincy – provides spiritual support to everyone regardless of their religion or beliefs. 

Music therapy – uses music to support communication and encourage self expression.

Complementary therapies – including massage and reflexology to ease anxiety, aid symptom control and encourage relaxation and comfort.

Volunteer drivers – use of The J’s Hospice mobility vehicle to enable patients to attend hospital appointments or The J’s Young Adult Groups.

Family support– someone to provide emotional and practical support both to a young adult and their family in their own home.

Young Adult Groups – These days allow young adults some time away from carers to socialise with people their own age, whilst enabling their parents to have some quality time together. 

End of life care – recognising when a young adult is near end of life and helping prepare them and their family, and providing practical and emotional support. 

Bereavement support – Continuing to be available after the loss of a loved one and offering support on a 1:1 or group basis.

“It is evident that The J's is providing care for young people who may otherwise have fallen through the gap or been admitted to hospital” – Essex Cancer Trust

Last Updated on Friday, 21 March 2014 10:08
 
Young Adult Group - Inspire! PDF Print E-mail
Written by The J's   
Thursday, 16 August 2012 14:05

The J’s Hospice launched its first young adult group on 2nd April 2011. Eleven young adults came along to the first session and they were joined by The J’s Hospice staff and many volunteers which meant that carers could take some time out for themselves if they wanted to. There were lots of activities on offer including an X Box, complementary therapy, music therapy, art therapy and hand and arm massage. There was also a quiet room available with lovely mood music and lighting.

Since the first group there have been other successful groups which are held at Farleigh Hospice every 6 weeks with various different activities, ranging from Christmas parties to firefighting with real firemen. It allows young adults some time away from carers to socialise withpeople their own age, and allows their parents some quality time together or to do the things that they can’t always do whilst caring for their young adult.

The Young Adult Group takes place 8 times a year, below is an archive of links to a selection of these events:

         April 2011       December 2011         April 2012                  June 2012                July 2012               

     September 2012           December 2012

For more information on upcoming dates for the Young Adult Group please call The J’s Hospice on 01245 475474 and ask for Katherine Barrett.

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Last Updated on Friday, 21 March 2014 10:09
 
Lasting Impact : Transforming Lives PDF Print E-mail
Written by The J's   
Tuesday, 16 October 2012 11:40

The J’s Hospice is specialist in providing care and support for young adults aged 16 - 40 years with life limiting and life threatening conditions and helps transform lives in many positive ways such as: 

  1.  Ensuring a successful transition from children’s to adult services.
  2.  Empowering young adults and their families so their voices are heard.
  3.  Supporting young adults with independence, life choices, access to work and education opportunities.
  4.  Pain and discomfort is reduced for young adults with chronic conditions.  By good symptom control The J’s team helps reduce avoidable hospital admissions.
  5.   Respite care helps families feel supported and reduces strain from the constant cycle of care that is often needed.
  6.  Improved wellbeing for young adults enhances life expectancy.
  7.  Young adults and their families are supported at the most critical times, such as at end of life.

 

“I was extremely impressed by the frankly extraordinary effect that your input has had.” Clinical Lecturer in Neurology from The National Hospital for Neurology and Neurosurgery.

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Last Updated on Friday, 21 March 2014 10:01
 
Inspiration behind the J's PDF Print E-mail
Written by The J's   
Thursday, 16 August 2012 13:54

Jonathan WhiffinThe J's has been formed in memory of Jonathan Whiffin who was diagnosed with Duchenne muscular dystrophy at the age of 3 years. Jonathan used children's hospices from the age of 14 to the time he died. Jonathan was a fun-loving, outdoors typical teenager who enjoyed socialising with people of all ages. His greatest love was dolphins and our logo represents this. During his teen years, his mum Denise realised there was a dire need for hospice and respite care once young adults outgrew children's hospices. Whatever their circumstances, young adults have the right to expect equality of access to the physical environment and all other aspects of society.

 

Last Updated on Friday, 21 March 2014 10:02
 
How we use cookies PDF Print E-mail
Written by The J's   
Wednesday, 23 January 2013 22:12

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